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Working towards a cure....

The Cavernoma Society is dedicated towards funding research and working on a cure for cavernoma. 

Our Research Goals

Finding a cure

Head Injury and cavernoma - is there a link?

Head Injury and cavernoma - is there a link?

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We're currently in late-stage talks with researchers to begin initial trials to find a cure for cavernoma in the next 5-10 years.

Head Injury and cavernoma - is there a link?

Head Injury and cavernoma - is there a link?

Head Injury and cavernoma - is there a link?

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Our initial survey into cavernoma and head injury brought about some interesting results. We're now ready to take this further and are looking to funds research with King's College London.

Relationships and cavernoma

Head Injury and cavernoma - is there a link?

Relationships and cavernoma

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Our in-house clinical psychologist has been conducting a study with members diagnosed with cavernoma and discussing how their cavernoma diagnosis has affected their relationship. The results of this study will be published in a medical journal in 2021.

Cavernoma Care Trial

Cavernoma and other conditions

Relationships and cavernoma

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We have agreed to be part of Cavernoma CARE Trial led by Professor Rustam Al-Shahi Salman in Edinburgh, which will look at the effectiveness of the active management of cavernoma through radio-surgery or neurosurgery versus a conservative watch and wait approach. 

Cavernoma and diagnosis

Cavernoma and other conditions

Cavernoma and other conditions

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We are interested in doing research into blood markers for cavernoma and how this could speed up diagnosis of the condition 

Cavernoma and other conditions

Cavernoma and other conditions

Cavernoma and other conditions

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Many of our members are diagnosed with other conditions alongside their cavernoma/s. We want to explore these links.

Copyright © 2018 Cavernoma Society - All Rights Reserved. 

Registered Charity number: 1184406

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