Working towards a cure....

We're currently in late-stage talks with researchers to begin initial trials to find a cure for cavernoma in the next 5-10 years.

Our initial survey into cavernoma and head injury brought about some interesting results. We're now ready to take this further and are looking to funds research with King's College London.

Our in-house clinical psychologist has been conducting a study with members diagnosed with cavernoma and discussing how their cavernoma diagnosis has affected their relationship. The results of this study will be published in a medical journal in 2021.

We have agreed to be part of Cavernoma CARE Trial led by Professor Rustam Al-Shahi Salman in Edinburgh, which will look at the effectiveness of the active management of cavernoma through radio-surgery or neurosurgery versus a conservative watch and wait approach. 

We are interested in doing research into blood markers for cavernoma and how this could speed up diagnosis of the condition 

Many of our members are diagnosed with other conditions alongside their cavernoma/s. We want to explore these links.