About Us
Emotional Support
We know that it can be scary when you're first diagnosed, as we've been in the same position ourselves. We offer a free counselling service for members and also offer 1:1 telephone support, online support groups, and wellbeing retreats, all full-funded. Our UK-based charity is run by volunteers who have been affected by cavernoma and we're here to support you on your cavernoma journey, so you don't have to do it alone!
Practical Support
We know how difficult it can be to understand cavernoma - especially when no one's heard of it and so little is known. This small uk-based charity aims to spread awareness and provide educational workshops to clinicians and other medical professionals so that they better understand your needs - so you feel heard!
Education
We will be helping to spread the word about Cavernoma and increase awareness! Our Raspberry Day, launched in 2018, is an annual cavernoma awareness day.